My first follow-up with the neurologist was yesterday. As expected, there hasn’t been a lot of change. Neurological disorders can’t be fixed overnight – if at all. There was a bright spot, however.
This first week had me doing a series of four “treatments”. One of them was to try and hold a laser pointer, strapped around my head, in a small circle drawn on a piece of paper and taped to the wall. The goal was to hold the light in the circle for 5 reps of 10 seconds each. The day before my appointment, I was able to hold the light in the circle for a full 10 seconds one time. It was a small step, but I was excited. The next morning, it was virtually impossible for me to hold the light steady for 2 seconds, let alone 10. I was frustrated.
When I shared what happened at my appointment, my neurologist assured me that that was very good. She also assured me that some days would be better than others and there were no determining factors one way or the other. “It’s an unpredictable thing”, she said. I also shared with her the response from many of you who have been told there’s no cure. She told me about her work with kids who have Tourette’s syndrome. She told me there’s “no cure” for that either, yet she’s seen improvement in the kids she works with. One of whom is her own daughter.
The appointment wasn’t long. We talked, she checked my movements, and she showed me two new exercises to add to my routine. I now have 4 treatments I do 3 times a day and 2 that I do 5 times a day.
It’s only been a week and I don’t expect things to change overnight. Being able to do that one exercise successfully, even once, was exciting and gave me hope. I really believe that Dr. Allen is committed to helping me get better. I don’t know whether I will be completely cured or not, but if there’s even the slightest hope I have to try.
I’ll keep you posted and in my prayers!